WE ARE HOME!!!!!

Guess What

WE ARE HOME!!!!!!!!!!!!!!!!

Thursday March 15th has been our discharge date for some time. We did not tell anyone for fear of jinxing it. After many many hours of teaching, learning, planning, organizing, and fretting we are finally home. It is so nice to not have to wake up to so many strangers everyday, to sleep in my own bed and more important to be with our family.
Leaving the security of the hospital will be a difficult transition because Stephanie is still medically fragile and requires a lot of medical attention.

We will have a full time nurse to help care for Stephanie both at home and school. Yes I did say school. Hopefully Stephie can go back to school on Tuesday. She is so excited so we will see what she can handle. She has a few extra tube bags and accessories but other than that she is the same gal who left in September.

The hospital is very supportive of have Stephanie live a “normal” life outside of the hospital but they did remind us that we will continue to be frequent flyers at Sick Kids. Stephanies medical issues are far from over but the hope is she can live as well if not better than what we were doing at hospital only here at home. She will be closely monitored by the many teams involved in her care. We continue to hold onto the the hope they will find a cure for Stephanie at some point.

Stephanie has never been happier to be at home with her sisters. Her many supports were there to see her off and she proudly walked through hospital telling anyone who would listen that she was going home. She quit her job (restocking flyers at The Family Resource Center), said her Good byes and after one last game of Bingo she happily skipped out of the hospital.

Happy St Patrick’s Day (this will be the best one ever!)

Denise