September in progress

September has really been banger of a month. Stephanie got out of the hospital just in time to start her first day of school. She had many appointments that first week of school however she did manage to attend school between seeing her docs Friday was the eventful day. She was not well so I took her to the GI clinic to have her tube looked at as it is often the source of the problems. It looked good we cleaned it up and had her back at school for 9:00.

Within a few hours I got the dreaded phone call that Stephanie's g tube had fallen out at school. Thankfully Greg was home that day and could rush over to the school. He got the catheter in but Stephanie let out a scream and it pop out and onto the floor. So, we must have to rush off to sick kids before everyone leaves for the weekend. Stephanie was very brave through this whole thing. Her biggest concern was that she was without her tube. She believes she actually is lucky to have it as it keeps her well. So without the tube her anxiety grew.

Stephanie really is not bouncing back from this recent hospital stay. We think she is really unwell but refuses to actually tell us in hope of not having to return to the hospital. We are trying to work with her but her disposition lately is really black or white. She said her tummy is making her angry. It is so difficult to watch a sweet little girl go through this every day.




Thats all for today
Denise